Stood for 50 seconds

Good Evening

 

Dialysis got started  this morning done around 1 oclock.  She still had bouts of nausea during the day but tonight seemed better.  I helped her stand up beside her bed, 50 seconds.   After that we used the lift and got her up in the wheelchair for an hour tonight.  Andrea napped several times during dialysis and none at all after that so she was real tired, especially after the poor night she had last night.  She woke up at 3 AM and didn't sleep till around 7 or so.  Maybe she did not get tired out enough yesterday, not sure.  Don't know what else to report so will close for now.

 

Goodnight, Maynard

Nausea Again

Hello Everyone

 

Today was a so so kind of day for Andrea.  If it was not for the sudden, without warning bouts of nausea it would have been a good day.  She had had a few days without any bouts of upset stomach last week so today she was a little disappointed.  Fortunately the length of these nausea spells were not very long today.  We had her stand up into the wheelchair and attended chapel services, but soon after it was over she wanted back to bed.  Around 7 Pm we used the sling and put her into the wheelchair and were out of the room for awhile again.  No nap for her today so she was very tired and I am sure by 10 PM she will be asleep for the night.  Tomorrow is dialysis again, not sure at what time.  Rather than be repetitious, I will close, goodnight.

 

regards, Maynard

Stood Twice for 30 seconds each!

Good Evening

 

Andrea's day started out well, she slept in late, PT came in and supervised the joint effort of Andrea and myself to stand her up.  She did this 3 times, twice for 30 seconds.  I did this the first time on Thursday and I was surprised at how much more strength and balance she had to stand, although after 3 times she is exhausted and needed rest.  After lunch we took her to the teen room where she was awhile.  As the day wore on she was uncomfortable and threw up twice tonight.  When I left she seemed chipper enough, hope she sleeps well.  She had visitors today so did not have a nap so maybe that had something to do with it.  We just hope and pray that tomorrow will be a better day.  Goodnight.

 

thanks, Maynard

Strength returning

Good Evening

 

Today was dialysis day again starting first thing this morning.  After she slept some and then under the supervision of an OT I helped Andrea from lying down to sitting up and then onto her feet and into the wheelchair, worked okay.  The Occupational Therapist a.k.a. OT, said she hoped to have Andrea stand up withe the parallel bars and take a few steps next Tuesday.  She still has no appetite yet so it is hard to have her eat more than a bite or two at a time.  She needs to eat more so that her stomach becomes more used to it.  We can see her strength slowly returning, and soon her physio and occupational therapy will graduate from the bed where they have gone as far as thye can, to more strenuous activity in the gym.  They are trying to get all muscle groups attention and as she is able they will push her harder and harder, as that is the only way to build up strength.  Welll I've ran out of inspiration so will stop.  Goodnight

 

Thanks, Maynard

Very Good Day

Good Evening  everybody

Well Andrea had a fairly good day again.  She got up from sitting position on the edge of her bed to standing 4 times today with some help.  Last night she slept better than she had for awhile and was more rested this morning.  Pt and Ot both had their turn with her today, doing exercises etc, she also played with an electronic game in bed this morning.  Her nap was an hour and later in the afternoon she had a shower and had her hair washed, after which she was very tired.  We are trying to get her to eat a teaspoonful 3 times daily, but because of her tube feeds she is almost never hungry.  In a week or so they want to pull her nose tube out far enough so the tube feeds go into her stomach, right now it is just passed through the stomach into the next part so that she is able to tolerate feeds at all.  That way they will bolus feed her and possibly not feed her at all during the night.  None of us are designed to receive nutrition 24/7.  We are all meant to eat a meal or something several times a day, and this is what they are hoping to have her do also eventually.  Then they will be able to shut off the tube feeds, she should get hungry and gradually as she grows stronger she will eat normally again.  Just need to be patient and take these steps as she is able to, meanwhile building up her strength at the same time.  I am tired so off to bed soon.

 

Thanks, Maynard

PS Andrea called me last night to brag about her day and all the therapy and standing and even eating she had done! It's so awesome to see here getting better! And that she's excited about it too. Nebs