Good Evening (yesterday evening)
Today we have experienced a few small steps in the right direction. Andrea had her breathing tube removed late this afternoon which is a big relief for her. Her day nurse was very dubious whether she would actually be able to manage on her own without her oxygen saturation going down and needing to be ventilated again. Every hour that she can manage without ventilation makes the likelihood of needing assistance more remote, unless some other crisis shows up. Another thing we had been waiting anxiously for was that her gut would start working again, and today it looks like it began again, and without bleeding, which is a big relief. She is still very weak and very shaky, hopefully tomorrow she can sit up on the edge of her bed. The negative is that her hemoglobin is very low, she is getting another transfusion now. The other issue is that her white cell count is up also, which indicates an infection somewhere, today the doctor said that she has had pneumonia, although mostly under control. Every few days her tubes need to be replaced and even started in new locations. We expect that to happen tomorrow. She had a real good uninterrupted sleep last night and we hope that is the case again tonight. Thanks again for all the support, cards, emails, phone calls, prayers,etc.
Till tomorrow night, Maynard
PS I hope none of you understood that Andrea had a wheelchair ride Saturday, she just asked for it. She is also asking to drink, but that will need to wait till she has a swallow study. Her bilirubin was also a little lower today.
Today we have experienced a few small steps in the right direction. Andrea had her breathing tube removed late this afternoon which is a big relief for her. Her day nurse was very dubious whether she would actually be able to manage on her own without her oxygen saturation going down and needing to be ventilated again. Every hour that she can manage without ventilation makes the likelihood of needing assistance more remote, unless some other crisis shows up. Another thing we had been waiting anxiously for was that her gut would start working again, and today it looks like it began again, and without bleeding, which is a big relief. She is still very weak and very shaky, hopefully tomorrow she can sit up on the edge of her bed. The negative is that her hemoglobin is very low, she is getting another transfusion now. The other issue is that her white cell count is up also, which indicates an infection somewhere, today the doctor said that she has had pneumonia, although mostly under control. Every few days her tubes need to be replaced and even started in new locations. We expect that to happen tomorrow. She had a real good uninterrupted sleep last night and we hope that is the case again tonight. Thanks again for all the support, cards, emails, phone calls, prayers,etc.
Till tomorrow night, Maynard
PS I hope none of you understood that Andrea had a wheelchair ride Saturday, she just asked for it. She is also asking to drink, but that will need to wait till she has a swallow study. Her bilirubin was also a little lower today.
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