Well, Andrea had another good day, down to PT this morning, dialysis this afternoon. I think I have reported that they were gradually switching Andrea over from a heparin continuous infusion to coumadin taken orally, decreasing the first and increasing the second one to replace the first. This has taken place over about 2 weeks, today she finally is on coumadin only, which means that she is not on any IV pumps anymore. They also increased her tube feeds so that in 24 hours she gets the same amount as before, only now she is allowed to rest from tube feeds for 2 hours out of 24, so she can be IV pole free going down to physio therapy. Now she needs to grow stronger and start eating enough so that she can have her nose tube removed. It has been in place a long time and she has had trouble with sores in that nostril which are very painful and have bled some too. Meanwhile we try to support her in any way we can, Faye has taken over much of her care, administering medications and keeping her tube feeds bag filled, besides all the other many things a mother can do for a child. Today a friend of hers was there and they had a nice little chat, which she is more ready to do. We spent 7 weeks in CVICU and yesterday was 7 weeks since she was moved onto the 4th floor. Time goes by fairly quickly some days and other days not so fast. It sure helps when she is feeling better that time goes more swiftly. And now it is time to get some rest.
Goodnight, Maynard
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