Hello Everyone
Today was another dialysis day, seemed that part went well. Andrea's pump doctor was gone for all of last week, so when he came back and heard what a struggle it was to handle her bolus feeds, he called in the dietitician and they went back to the formula she was on before. They are also going to run them all night and for a 2 hour stretch in the afternoon. They were expecting that along with the bolus feeds she might eat maybe another 500 calories or so, instead it got less and less, so actually she was being malnourished. She actually ate more before with more calories coming from her tube feeds, and still she was starting to nibble abit, and now she had completely stopped. Hopefully this will put her back on track again, I could tell from being the only one getting her up, that she was losing strength, not gaining strength like was expected. She did not walk in physiotherapy but stood up a few times. If she expects to get home by her birthday on May 23, which is the goal of the care team, she will need to make some rapid progress soon. Please remember us in your thoughts and prayers, we need them.
Goodnight, Maynard
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