April 2

Good Evening

 

Well Andrea is back in her room at the hospital again, arrived there at 5 pm, almost 24 hours exactly that she was gone from there.  It is not a panic situation at all, just that maybe it was a little premature to try a weekend pass, everything is a lot different, so quiet in the room,bed a lot different etc.  She for some reason got very little sleep last night which contributed to her problems today, which were compounded by the fact that her feeds were not going well.  She had her tube pulled back only 11 days ago, and was switched from constant feeds to bolus feeding 4 300 cc cans in 12 hours, seems like too much too fast.  The other problem is that with bolus feeding is now we were trying to do it without a pump, just gravity feed, the feeds are very sticky and don't flow very well, so it is very hard to control the rate.  Once we got her back to the hospital bed they gave her Zofran IV to settle down her nausea.  It worked it's magic once more, she slept for an hour and tonight she was alert and enjoying her Cricut machine, a small computerized scrapbooking machine which we got her for Christmas.  She has not used it much yet, hopefully it will see  a lot more use in the coming days.  Toorrow she is getting visitors, so if she is still feeling good and the weather is nice we might take her out again.  I think her physiotherapy will pick up speed, they will start pushing her harder which will be good.  Currently I always am the one to help her up from lying down to standing up and into the wheelchair and back to bed, so I can tell when she is feeling stronger or not. She is one of those patients who fool doctors into thinking she is a lot better than she really is, I sometimes wish they had more time to see how she really is doing, spending more time with her, it would help them to make much more informed decisions.  Until next time, goodnight.

 

Thanks, Maynard