Has a Weekend Pass for the RMH

Good Evening To All

 

Today was a good day again for Andrea. She was down to physio therapy in the morning, went driving around some, played Bingo at the Beach, back to her room.  She napped awhile and afterward she had a shower, washed her hair etc, probably am missing something other activity she was involved with.  Since her day passes went so well the last 2 days, now the doctor wants to let her go ao a weekend pass.  If all goes well after dialysis tomorrow morning, and getting all the logistics figured out, and if she is still feeling okay, she will come with us in the late afternoon or so, and return to her room sometime Sunday evening to be there for dialysis Monday morning.  If you would have spent a few days with us recently, you would understand what a huge undertaking this is for her and us.  We are excited and more than willing for it, but since she needs help for nearly everything, it will fully occupy us.  It means bringing a power base unit for night time use, all the batteries for it, her reserve pack  controller, her feeding tube apparatus, all the flushes for the feeding tube, all medications etc.  She still requires a lot of help to situp, move to the wheelchair, to the car, to bed and the list goes on.  Will likely need to go shopping in the morning for some more luggage to get it all done.  Now she is being switched from her feed pump to a gravity fed tube, bolus feeding during the day so that she can sleep in a regular bed lying down flat.  When we were here yesterday she lay down on the bed here and said "this feels so good to lie in a bed like this again".  This is all progress, it's what we want, it's what she wants, and it will likely speed up her progress quite abit, but it is a bit sooner than we had expected.  The good thing is that we are not far from the hospital if we need anything like supplies or any advice or help.  The next goal is to get her started eating again so the feeding tube can come out.  So far she is not eating much of anything, her needs are being met nutritionally with tube feeds so she is never hungry.  Hopefully her mother's cooking will help to restart her appetite, then tube feed amounts can be reduced and finally stopped altogether.  I am very tired now so will close.

 

Regards, Maynard