Sickness

Hi everyone

Just got back from the Stollery, Andrea was asleep early tonite. Her day was a little better, her pain from the cath procedure on Friday was less, her diahreaha is less but she has been very nauseous, wishing she could throw up but unable to, makes her feel very miserable. About noon they switched her from Zofran, an anti nausea marijuana derivative, to Maxeran which seems to have worked a little better. Otherwise it was a quiet day, no visitors appeared. Andrea is very weak, she still walks from her bed to the bathroom, but that is about it. Today was the first day in awhile that she wanted to get out of her room. We got her in a wheelchair all bundled up, took her IV pole and various pumps and bags and actually went down to first floor for a bit. tuesday or Wednesday the paeds and adult doctors will sit down to discuss their various cases of which hers will be included, and an action plan will hopefully come together for her. Yes we are back in 4C3-14, the same room that she had for nigh on to a year 10 years ago. Sometimes it feels like we never left that room. It is very hard to know how to feel as we have been through this process not only once, but twice. Feels like decisions that need to be made are going to be harder to make than ever. Andrea is so much more aware now than she was 10 years ago, emotionally it is taking a toll on her too. We need to be objective and optimistic for her sake first, but also for ours too. Remember her in your prayers first of all, and us too that we may make the right decisions.

Thanks, Maynard