Andrea had an okay but busy day. Somewhere in the gigantic beaureaucracy of the hospital, dialysis people did not get their orders for Andrea's dialysis run first thing this morning, should have started at 7 AM, was 10 AM by the time they got started, so it made the rest of the day quite hectic. Kialysis takes a lot out of her, she becomes very cold, and after she just wants to sleep. Apparently this is very common and so she slept for 2.5 hours this afternoon. While dialysis was running they still did Pt and Ot, then different ones come by and want to check in on her also, so we did not manage to get her up in a wheelchair at all today,but she did sit up on the edge of the bed. The double lumen line that she ahd put in her neck 8 weeks ago has become very painful, especially when they hook her up to dialysis, it also impedes her progress because she favors her neck so carefully. Tomorrow they plan to take her down to Radiology and install a central access line so they can remove the lines in her neck. The fancy name for that type of line is BROVIAC, it is tunnelled under her skin from a convenient spot, and enters a blood vessel somewhere not sure where they will put it. She still has a PIC line in her arm above her elbow,same type of application, not sure whether they will remove the arm line or not. Hopefully these changes will get her more mobility, less pain also. The pump doc is still reluctant to remove her trache from her throat, if all goes well maybe it will come out by the end of the week. After that they will wait a few days and do a swallow study to be sure she is not aspirating and maybe then she will be able to start eating and drinking again.
Thanks, Maynard
PS. For those of you who want to continue emailing her directly, go to Alberta health Services website, Mazankowski heart Institute, follow the links, and she is now on 4th floor 4A5 or 6 not sure, bed 2
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