Today was a bit of a stand still day for Andrea. She is so very thin and has lost so much muscle tone that she has been quite sore. This morning her left shoulder hurt her very much, seemed like the pain killer hardly touched it. Tonight it was her right side which hurt, where the drainage tube was removed last week. Pt and Ot did not work with ther today, they found a wheelchair that will work for her, we hope, we had her up in it for 2 hours this afternoon, of which she slept for 1.5 hours. It is a chair like most of you have never seen, wonder how much it cost. Very adjustable, back reclines, whole chair, seat and back recline as one, sides can be moved in together to support her shoulders, etc. It is very good therapy for her to sit up and get out of the bed, be more in a vertical position. By tonight her pain was more under control and she was more restful. When we got her up in her new wheelchair I suggested going outside as it was so warm, and so we bundled her up and went outside for 5 minutes, which was a good diversion for her. We started with pump training yesterday and today, likely about 35 hours of it in total. If we look at the changes from yesterday till today it seems so small, but if we look at where she was only one month ago, then she has made some good improvement, we need to remind ourselves often that we were told it would likely mean a long and gradual recovery. Please remember her and us in your prayers.
Goodnight, Maynard
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